Still playing catch-up here.....
I met with my new surgeon on September 19th. Going into the appointment, I was pretty nervous and didn't really expect very much to come out of it...but boy, was I wrong! My new surgeon was very confident he could fix all my issues and gave me a few different surgical options! He said he could repair my parastomal hernia (with mesh), form a new end-loop ileostomy (basically a loop ileostomy with a smaller distal loop to avoid prolapse), and remove part of my colon and perform a rectopexy to fix the rectal prolapse that came back! But, before doing any surgery, he wanted to do a colonoscopy and have me do another defecogram. I left that appointment very unsure and hesitant to trust another surgeon that I just met with such a major surgery, but he said to go to his ER if I had another major prolapse in the meantime. The following week I had the colonoscopy and discussed my surgical options with my family. He gave me the option to do the surgery all at once, or in separate parts but my family felt that it would be best to just get everything over with at once.
Well, with my luck, 2 days after my colonoscopy I ended up in the ER with my stoma horribly prolapsed and swollen...AGAIN! I was admitted to the hospital on a Sunday and given dilaudid to ease the pain, but unfortunately my surgeon was not on-call that night and the residents had their own agenda! My mom and I both told them NOT to try pushing my stoma back in (advice from the previous surgeon) becuase it will not work and only cause more pain and agony, but they ignored us completely! After a failed attempt to ease it back in with sugar (Yes, they dumped multiple packs of sugar onto my stoma!), they decided to put another bag on and leave me laying in reverse trendelenburg (laying on back w/ feet higher than head) position til my surgeon can perform the surgery on Wednesday! By this point I was in excruciating pain, my stoma was prolapsed and swollen, I had a urinary catheter,a pain pump and was on strict bed rest! As expected, the measures they took to prevent further prolapse failed miserably! By Tuesday night my stoma swelled so badly that it started to look like it was becoming necrotic. Drs were in every 30 mins throughout that night, and then the following day, I went in for surgery! Since I hadn't officially made my decision on what surgery I wanted before I was admitted and on heavy pain meds, I left the decision up to my mom. The final decision ended up being the full 3-part surgery which included a new stoma, bovine mesh around the stoma, colon & rectal resection, and a rectopexy! In my next post I will explain what happened after surgery!
EDS is a complicated & confusing connective tissue disorder with many sub types. I was diagnosed with EDS Hypermobility but have certain characteristics of Classic EDS as well. YouTube Channel: https://www.youtube.com/channel/UCXLRnq6DSjydCHpiTM2ciMg/videos Facebook Page: https://www.facebook.com/meandmystoma CONDITIONS: -GERD -Factor V Leiden -Rectal Prolapse -Constipation -Endometriosis -Borderline Prolonged QT -Pericardial Effusion -Loop Ileostomy
Showing posts with label ER. Show all posts
Showing posts with label ER. Show all posts
Friday, January 31, 2014
STOMA PROLAPSE!!!
Hi again! I apologize for the delay in posts! My goal was to keep up with this blog, but I got a little sidetracked. Anyways....there has been A LOT going on in the past few months that I want to share, so I am going to start playing catch-up right now!
On August 8th, 2013 my day started out like any other "normal" day since surgery. I picked up a new hernia belt in the morning, had a smoothie on my way home and by night-time I noticed that my stoma looked like it was sticking out more than usual. Knowing what a prolapse looks like, from experiencing rectal prolapse a few months back, I broke down into tears fearing this was just the beginning of a very long road, yet again! To make matters worse, my 20th birthday was the next day and I was SO excited to start a new chapter of my life as a HEALTHY college student. Unfortunately the prolapse continued to rapidly worsen and I spent the whole night Aug. 8th and the whole day of Aug. 9th (my birthday) on bed rest, in excruciating pain! Any time I even switched positions or stood up to use the bathroom, my stoma would continue to prolapse! I was given Valium as an attempt to ease my stoma back in and calm me down, but unfortunately it didn't do much. The prolapse was getting so bad (8 inches), swollen, and painful that I ended up in the hospital later that night! After 4-5 failed attempts to push my stoma back inside in the ER, I was finally taken to the OR where the surgeon was able to get my stoma back in without causing me pain. I spent the next couple of days in the hospital and then returned home (after visiting with the therapy dog at the hospital- pic below). I was given instructions to follow-up with my colorectal surgeon to discuss further surgical options to fix the prolapse. Although the ER surgeon was able to get it back in, she said there is a very good change it will continue to prolapse. Unfortunatley, the colorectal surgeon who formed my ileostomy (@Mayo) did not know what else to do for me, so she referred me to a local colorectal surgeon. At the time, I was extremely upset and disappointed that she just left me with such an issue and had no solution, but the switch to a new surgeon ended up being a REALLY good decision! I will discuss that experience in my next post...
On August 8th, 2013 my day started out like any other "normal" day since surgery. I picked up a new hernia belt in the morning, had a smoothie on my way home and by night-time I noticed that my stoma looked like it was sticking out more than usual. Knowing what a prolapse looks like, from experiencing rectal prolapse a few months back, I broke down into tears fearing this was just the beginning of a very long road, yet again! To make matters worse, my 20th birthday was the next day and I was SO excited to start a new chapter of my life as a HEALTHY college student. Unfortunately the prolapse continued to rapidly worsen and I spent the whole night Aug. 8th and the whole day of Aug. 9th (my birthday) on bed rest, in excruciating pain! Any time I even switched positions or stood up to use the bathroom, my stoma would continue to prolapse! I was given Valium as an attempt to ease my stoma back in and calm me down, but unfortunately it didn't do much. The prolapse was getting so bad (8 inches), swollen, and painful that I ended up in the hospital later that night! After 4-5 failed attempts to push my stoma back inside in the ER, I was finally taken to the OR where the surgeon was able to get my stoma back in without causing me pain. I spent the next couple of days in the hospital and then returned home (after visiting with the therapy dog at the hospital- pic below). I was given instructions to follow-up with my colorectal surgeon to discuss further surgical options to fix the prolapse. Although the ER surgeon was able to get it back in, she said there is a very good change it will continue to prolapse. Unfortunatley, the colorectal surgeon who formed my ileostomy (@Mayo) did not know what else to do for me, so she referred me to a local colorectal surgeon. At the time, I was extremely upset and disappointed that she just left me with such an issue and had no solution, but the switch to a new surgeon ended up being a REALLY good decision! I will discuss that experience in my next post...
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